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Parkinson Disease - My experience as a Parkinson Disease sufferer.
Small Website About Parkinsons Disease
Shake, Rattle and Roll: An insider's view of PD
From the Advisors' Desk
Parkinson's Disease Update
MOZART MOVEMENT

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Small Website About Parkinsons Disease
Posted by: jrohwer
ADDED: 5/8/2007 10:24:26 PM

"I was diagnosed a couple of years ago with young onset parkinsons disease, not a great birthday present at the time but I`m slowly coming to accept it. Theres also a link to my blog which I try and post as often as I can. If you have recently been diagnosed with parkinsons disease, dont give up hope, theres a lot of people on the net with the same condition and a lot of support groups around."

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Username	Comments
jinnyy Posted Jun 7 2007 7:46AM	i am a caregive of 84 husband who also is blind and heart failure tired is my biggest as i am diabetic and arthritis but keep going he on his walker. i am 82 soon and hard to keep up i have 3 hrs. help a day leaves me with 21. amen god blesss
toppy1940 Posted Jun 18 2007 12:39AM	Parkinson's Disease Health Center Font SizeA A A BP Drug May Curb Parkinson's Disease Dynacirc May Work by ‘Rejuvenating’ Brain Cells By Miranda Hitti WebMD Medical NewsReviewed by Louise Chang, MD
toppy1940 Posted Jun 18 2007 12:42AM	LETTER TO THE EDITOR WASHINGTON POST JUNE 17, 2007 PARKINSON’S DESEASE – A CURE FOUND I have Parkinson’s disease. I am 66, 67come November, and I was diagnosed four years ago. At first a slight tremor in my left hand. As of last week, difficulty in walking, go to work at 9 and have to come home at 4 and sit in my chair till 9, go to bed, then up at 2, after a fitful sleep, for internet surfing. Could not do physical activity for more than a couple of minutes at a time. Go to the bathroom every half hour. Gained 50 lbs on the meds. Feel mental acuity not what it was. My doctor had me on blood pressure pill Toprol XL 50 mg; cholesterol pill Zetia 10mg (can not take the usual because they disorient me – this one works in the intestine, thus no brain complications); and finally a baby Asperin for stroke protection. My neurologist has me on Aricept 10 mg for Alzheimer prevention, (seems to work); Mirapex 5mg for Parkinson’s; Carb/llevo ER TAB 25 100mb for Pa
starry44 Posted Jul 27 2007 12:57AM	Hello toppy1940, I am currently a senior student and have read about Parkinson's disease.I did not know much about it so I decided, that when it came time to do my disease assignment, it was my oppotunity to find out more.We are told that we must interview a patient of the disease(in my case Parkinson's)to discover how it effects there lives. I read your story and would be very appreciative if you would'nt mind taking a few minutes to answer some questions I can email to you, over the internet.EVERYTHING will be kept anonymous.Please contact me if your interested on my email...Jenni100g@yahoo.co.nz . Thanks for your time!
mamawkaffee Posted Aug 15 2007 4:23PM	i was also diagnosed with y.o p.d. almost 7 yrs. ago, and am now having alot of symptoms that are becoming alot worse in a short span of time,my dr. has suggested the dbs surgery and i am afraid to have it done, anyone out there that can identify with this feeling??
sacksj Posted Nov 26 2007 6:59AM	About the "Small Website About PD," I wanted to let the author of that comment and others diagnosed with young onset PD that the American Parkinson Disease Association (APDA) is the only PD organization with a dedicated Young Onset Center. The Center focuses on helping those with young onset PD, their family members, friends, and healthcare professionals get the education and support they need to manage the disease successfully. APDA's National Young Onset Center can be reached by calling 877-223-3801 (toll-free) or by visiting our Web site at www.youngparkinsons.org. The Web site is currently being re-designed and will be re-launched in early 2008.
jeanb311 Posted Jun 15 2008 5:03AM	www.showusthecure.com Declaration of Research Rights and Responsibilities for People with Parkinson's Open letter to the Parkinson community and our friends: To increase participation in clinical trials, bring new therapies to market sooner, and hasten discovery of a cure for Parkinson’s disease, patient advocates have written the (click here) Declaration of Clinical Research Rights and Responsibilities for People with Parkinson's (PWP). Led by members of the Parkinson Pipeline Project and assisted by PDPlan4life – with the support of the Parkinson's Disease Foundation – the effort reflects the experiences of PWP who have participated in clinical trials, incorporating their suggestions for improving the process and the treatment of human trial participants, and adding safeguards to help build trust among all stakeholders in the drug development process. Now we need your feedback and endorsement to help us win acceptance of this Declaration and adherence to its princi
burns311 Posted Aug 16 2008 9:18AM	In the next few weeks we will be making our final push for a petition asking the postal service to create a stamp to promote awareness of Parkinson's disease. Our goal is to obtain 5,000 signatures. (currently we have about 3200 signatures) With your help, we can do this. Please send this link to the petition to friends & family far and wide. http://www.pdstamp.org . . . Jean
Serick Posted Apr 21 2009 1:37PM	This is question more than a comment. My husband had deep brain surgery last July to implant neurotransmitters. He has had a terrible time with falling because of balance problems. We are not in month 8 of working to balance the meds with the transmitters. If he is 'on', he becomes too dyskinetic to function unless he is sitting still reading, etc. If he turns himself off, he eventually becomes too weak, so must turn back on. Doctor says he is looking for a trend. Has anyone else out there dealt with this particular problem? Is so, how was it resolved? Sure could use some encouragement, as this has been a much longer road to travel than we expected. Serick
KarinC Posted Jul 5 2010 7:10AM	We've been informed that my husband has "mild parkinson's" yet he can stop his tremors. He's been on carbidopa for a little over a year and it doesn't help. Anyone know of a Parkinson's specialist who can actually tell me if he has Parkinson's. We're in Western Mass. Further, he's had 3 operations (the latest on the L4-L5 joints for a fusion) in the past year. He's 58, his son went off to college last year, and he recently lost his mom - emotional states make the shaking worse.
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